← Return to Anyone else have Mantle Cell Lymphoma?

Discussion

Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)

Comment receiving replies
@loribmt

Hi @nhlbob, it’s been a while since we’ve chatted and I’ve been wondering where you are on treatment. I know you were struggling with water or not to stay in Bangkok or head to the US. Did you make any decision about that and the treatment options?

Jump to this post


Replies to "Hi @nhlbob, it’s been a while since we’ve chatted and I’ve been wondering where you are..."

Hi Lori - thank you so much for the contact. Since we last messaged, I've had two tele med appointments with my Mayo oncologist who is absolutely great!!! I can't tell you te level of comfort I feel and the confidence I have in in compared to the doctors inBangkok. I'm flying to Mayo Rochester in two weeks. I've had a neuromuscular issue for a decade that my Mayo oncologist at wanted me to have a workup done with a neurologist there to see if the lymphoma is related or not, as that would dictate treatment. My Mayo oncologist has also requested the pathology sample from the Bangkok hospital because he wants to make sure the disease is actually mantle cell or if it's some other subtype. They'll be running FISH, genetic and next gen sequencing tests which will give a much clearer picture of things. Assuming the diagnosis is still mantle cell after the testing, my Mayo oncologist had indicated if he is certain the neuromuscular symptoms are separate (which he suspects they will be), he indicated I would be a candidate for watch and wait. But he also said that he feels I would go into remission with perhaps only 4 cycles of the BR treatment and might not need the full 6 cycles which is standard. So I'll hopefully know where things stand by August 5th.

How are you? I hope well!