Judy, sadly that’s par for the course with some of our blood diseases…fatigue. And with that drop in your husband’s hemoglobin, albeit small, it can make a difference in the oxygen level in his breathing along with the amyloidosis.

I’m sure this is so frustrating for both of you. It’s hard being the caregiver with trying to be the cheerleader. I hope your husband finds some positive activity he can do daily to keep pushing forward. Truly, I do understand and it’s easy to want to just give up. But it’s so vital to always look forward to something on a daily basis. We need longterm goals even when we don’t feel there’s a future!
I remember when my mom was diagnosed with kidney cancer many years ago. She mentally gave up! I did my best to encourage her but she was so pessimistic that there was no hope. Well, there was hope! And at one point, I even got a little miffed because her doctors had said that, though inoperable because of her age, she could possibly have several good years! So I ended up telling her that it’s her choice…she can either choose to abide in this sad, morbid existence which in which she is already on her ‘death bed’ or she can choose to live until she does pass away. Guess what! My mom chose life and had several really fun years resuming all activities she’d given up because she felt she was a goner. Our mental attitudes can really make an enormous difference in determining our daily lives.
I hope you’re finding some goodness in every day too. ☺️