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Metastatic Castration Resistant Prostate Cancer
Has anyone after having brachytherapy, ADT, Casodex and abiraterone tried a cannabinoid with any success?
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Has anyone after having brachytherapy, ADT, Casodex and abiraterone tried a cannabinoid with any success?
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
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Welcome @rso.
You may also be interested in this related discussion where members like @safari1949 @papabill @waynen @norske46 @stoney1967 discuss treatments they have used or are using:
- Stage 4 prostate cancer treatment options https://connect.mayoclinic.org/discussion/stage-4-treatment-options/
RSO: Has the cancer stopped responding to the other treatments including Casodex (bicalutamide) and Zytiga (abiraterone)? Are you looking into cannabinoids to manage side effects like pain?
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2 ReactionsFailed on abiraterone after taking it for 8 months, Genome testing showed resistant biomarkers, Too bad the testing isn't done initially. Failed on Casodex as well. Now having gross hematuria. Read that RSO reduces tumors. It can be taken with chemo.
Tumor reduction
RSO: This journey we are on has all kinds of challenges. We think we are making progress with one treatment and then things change. Patience is the name of the game. Nothing seems to come easy and just when it seems something is working, it stops working. The good news is there is another treatment waiting to be applied.
My journey started in January 2019 when a routine PSA showed 197. When I was first seen a month later it was 541. Immediately began treatment with bicalutimide. Biopsy confirmed cancer with Gleason of 10 in all samples.
PET scan with axumin confirmed metastatic cancer in spine, ribs and shoulder. Started Eligard (lupron) a month later (I get a shot every 6 months with minimal side effects) . PSA began to drop. Added zolodronic acid for bone strength. Added radiation treatments that summer and got PSA down to 2. It did not last. Changed from bicalutimide to enzalutimide. Again a decent decline in PSA but it didn't last. Dropped enzalutimide and started radium223 treatments. Got four of the six treatments.
PSA rose to about 1100. Did bone marrow biopsy. Confirmed cancer in the bone marrow. That has caused issues with blood counts, strength and stamina. Began docatxel with my final, sixth, dose coming this week. PSA is dropping with the latest reading at 28.
I relate all of this as an example of the ups and downs when treating this disease. It is a long difficult journey and each person's is different. Be patient, trust your medical team, remember there are new treatments coming all the time and new treatments in development. Do your best to stay positive. Stay active with activities you enjoy.
I hope this of some help to you.
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5 ReactionsI have been on Zytiga since Dec. 2019 and a recent CT scan and bone scan showed NO sign of cancer. Actually the tech who did the bone scan was surprised at how clean my bones were. I live in NM where cannabis is legal but we travel a lot to Texas where it is not legal. As a result I am not planning on using it. Currently I have no pain issues at all. My oncologist at UMC Lubbock told me "this cancer will not kill you because we have so many tools to work with if anything stops working".
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2 ReactionsThank you for sharing your treatment timeline. The resistance has been the biggest challenge for mine. Docetaxal not working as it acts like abiraterone. Another scan scheduled and hopefully switching to cabazitaxel. And yes, always new research and studies. Cannabinoids as well. Why not try plants instead of harsh chemicals.
Thank you for your reply. Keep up that positive attitude.
I have been lucky that I have been fighting this cancer since 2009 which back then was misdiagnosed as bladder. Kept getting BCG and never had the prostate evaluated until another doctor in Florida decided to do a biopsy in 2018. Gleason 8 and it's been a crazy journey ever since and still fighting. RSO claims to reduce tumors so I pray more studies prove this to be the case. Stop putting poison into people.
Thank you RSO. I do best when I stay in the moment. The ups and downs just seem to happen. I've searched and found a palliative care and cancer care team that are the right fit for me. Trust in the team is vital to wellbeing. With lots of self-compassion we've developed a flexible optimized wellness program that takes into account all the treatment side effects, emotional ups and downs, and diet.
RSO, love your statement; "Stay positive, stay active with activities you enjoy." Thank you.