Hi Colleen,
Thank you for your reply, it maybe that I’m interested in Narcolepsy type 2.
I have been taking medication for about 10+ yrs, at the time I had a sleep study which ruled out Narcolepsy and I was told I have EDS. My medication enabled me to continue working as a nurse, as I would fall asleep at inappropriate times, and it was difficult to drive long distance. The med has made a world of difference.
We have moved to NY and my present Dr. Is not comfortable prescribing my med without a Narcolepsy diagnosis. I don’t want the diagnosis because I would probably not be allowed to drive, but without it my days would be wasted, so I’m between a rock and a hard
place. I don’t have cataplexy or hypnagogic dreams, but I do have many other symptoms.
I was not aware of there being a type 1 and type 2 diagnosis. It’s an interesting subject anyway so I’ll learn new aspects of it.
I still have memory problems, a brain MRI revealed that I had had some very minor strokes. I was also low in Vit: B12 and recieved Vit B shots for a few months followed by B12 by mouth. I was surprised to experience the difference it made.
Later on my B12 was too high so I stopped taking it. After several months I started to experience increased memory problems, a recent blood test revealed a low B12 again. So I can believe the difference it makes.
This may be helpful info for other people on Mayo and I share it with friends when the subject comes up.
Bye for now,
Emy.