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Small Fiber Neuropathy biopsy test results

Neuropathy | Last Active: Feb 15 2:46pm | Replies (36)

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@boltz7555

@rnlorena I had a lot of those cardiac tests you mention also. It was the tilt table/autonomics testing my neurologist did that diagnosed the POTS. All the cardiac testing just concluded “tachycardia”, basically. I hear from so many people that it’s extremely difficult for them to get into Mayo. It was very simple for me. I wonder if it has to do with insurance. I just called, shared with them that I was looking for a second opinion and requested a specific doctor (based on my online research of the providers at Mayo). One thing worth mentioning is that my insurance does not require a referral. I can choose my specialists, as long as they are in network, without a referral. Maybe insurance is the difference? Which Mayo would you look to get into? I live in Phoenix and am very lucky that they’re practically in my backyard.

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Replies to "@rnlorena I had a lot of those cardiac tests you mention also. It was the tilt..."

Robyn, I would be looking at Jacksonville Mayo. I checked on my insurance and they would cover Mayo. I can go to any Dr. I want. I have been a little upset about Drs. When I first had the funny feeling in my chest I went to the place where I had been before for cardiac. I saw a new Dr. they hired. He sat in a chair and didn"t listen to a thing I said. He had on an Apple Watch and said that it would be good if I had one. I was ticked off to the max when I left there. I found out where my cardiac Dr. was and made an appt. Recently I had a few other things happen with Drs. It is not me. I recently left a Dr. that I really liked. Back in Dec. I was supposed to have a sixth month check up with her. I was looking forward to it because I had some issues. They called me and cancelled the appt the day before and said they weren't sure how long she was going to be out of office. We are talking months. I asked who I would see. They were very unprepared. I told her when I went that I was anemic last year and had to take Optiferrin-C well I had blood work and when I went on line to look at it I saw a lot of reds. I had to call them and ask what the problem was. I have never ever had to do that. Ever. I was upset. So I called them and wanted answers. I get a call back and they said well you are slightly anemic. Didn't say what I should do. I go to the visit and she says I should take the Optiferrin-C three times a week. I mentioned I wanted to go to Mayo and this is what she said. Well she didn't think it was a good idea because of the amount of money that it could take. I am extremely upset about that. I really want to find another Dr. but this time I will have to be more cautious. I had gone to another appt. and asked about my blood work and before I left I was told that the ARNP would have to speak with the Dr. and they would call me. After nearly a week went by I called them. Well we are sorry that we didn't call but we sent your information to one of my Drs and said I needed to call them. I have never had to do that ever. I called them and they never got the paperwork. The nurse made me an appt and I said I would print out my labs and bring them myself. It makes it hard for anyone who has issues to not just deal with the issues they have but that kind of stuff also. I will have a lot of questions about how they run their office for sure.