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Glutathione: What dosage do you use? Where do you get it?
MAC & Bronchiectasis | Last Active: Jul 15 6:59am | Replies (116)Comment receiving replies
Hi Nan!!
Happy Fourth! Hope you are well!
I am just circling back on the glutathione. I was so focused and determined to get it and did as you know. I just think I am not tolerating it well. I started at the 1 cc dose, just once a day and was experiencing a very heavy chest which is unusual for me. It was almost continuous. So I skipped a day...then went down to .5 dose once and did okay a few times at that dose then heavy chest started again. So I skipped a couple days...went away. So tried again and heavy chest returned even at the lower dose. Have you ever noticed this when you use it?
I remember reading an article/study when I researched the glutathione that said it can make asthma symptoms worse in some people especially very asymptomatic people. I have never had Asthma symptoms except the very infrequent heavy chest. Anyway, I think I am going to have to stop the G. Bummed.
Also do you practice airway clearance techniques, Nan? If so, what do you do? These also seem to aggravate the heck out of my lungs and rarely do I have any results. If I do it is a miniscule amount of clearish to slightly pale yellow mucus. Sometimes I actually feel something move when I do the coughs after but then nothing makes it out. One pulmonary told me don't do it but they really emphasis the importance of this in everything I read.
One exciting thing is the head of a prestigious medical school here is taking me on as a patient of sorts. He is a friend of a friend. President of this University and also a pulmonary specialist that did his fellowship at National Jewish! He has assembled a team of specialists to review all my history and I will meet with them Wed. I have already had 2 one hour calls with him. He is so sharp and very thorough. I am curious to see what they come up with and then what from there....not sure if this is a one time thing (sort of a consult) but he said worse case he would get me into Denver. But he does not especially feel I will need that. He was happy with everything I am doing but had NO COMMENT on the glutathione 8-))))
Thanks, Nan!!
Replies to "Hi Nan!! Happy Fourth! Hope you are well! I am just circling back on the glutathione...."
Hi Kathleen,
Sounds like we have the same set of lungs. My lungs produce very little mucus. It is a real feat to produce mucus for a lab sample.
However, I do the airway clearance. I squeeze my lungs to get out all the air and that can be productive.
Let us know how it went with your appointment with the guy who's taking you on.
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@kathleenlp Hi Kathleen, no I've never had any heaviness in my chest when using glutathione. And as for airway clearance techniques, I just do postural drainage by lying on my back and then doing some huff coughing which pushes the phlegm up the airways. I've been pretty lucky with just doing that and haven't had to use an aerobika or a vest. And my pulmonologist kind of rolled his eyes when I asked him about glutathione.....I think there's just not enough scientific evidence on it yet. It's an alternative thing to do and I'm an alternative kinda gal. I'm not scared of trying things and I do and have had no problems thus far. And I do research and make decisions on my own. I mean when I think about it, my first pulmonologist didn't even want to prescribe saline solution for goodness sakes and I asked him to look it up for me and that I wanted to do it, so I did and that was six years ago. And it's probably the best thing that ever happened to a lot of us. And it was alternative at that point. Nan