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The good and bad of Prednisone for PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 23, 2022 | Replies (32)

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@heatherkathlyn

I was diagnosed with PMR in September 2021. I am currently taking 10 mg of prednisone. I have experienced muscle spasms and twitching since the beginning. These have not been painful and occur only when I am lying down.

I have been struggling to reduce my prednisone intake below 10 mg. Recently I spent 3 miserable weeks when I reduced to 9 mg. I was in pain along with fatigue and brain fog. In the third week I discovered this chat group and it has been extremely helpful. The mention of importance of quality of life over speedy withdrawal of prednisone rang very true for me. An earlier post discussed reducing by alternating a current dose with a reduced dose and gradually increasing the days between the two. I began doing this a few days ago but it is too soon to know if it is helpful for me.

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Replies to "I was diagnosed with PMR in September 2021. I am currently taking 10 mg of prednisone...."

Thank you for your reply.

Welcome @heatherkathlyn, I think we all struggle some when trying to taper off of prednisone. There are a couple of other discussions you might find helpful on tapering.

-- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/
-- Prednisone tapering and remission: https://connect.mayoclinic.org/discussion/prednisone-tapering-and-remission/

Have you tried to make any lifestyle changes to help with your PMR symptoms?