@msfins -It will get better! I had a heart double lung transplant in April 2021. I was so weak I could hardly sit up on my own. When I was discharged from the hospital after 3 weeks I couldn’t hardly stand up on my own. I used a walker and had no strength. I started a journal the day I was discharged titled ‘small steps forward and smaller steps backwards’. At the end of every day I wrote down the steps forward-some were as simple as getting off the toilet by myself or walking down the hall alone. I also wrote down the steps backwards (leg swelling, tired, etc). The little accomplishments added up.
I also had terrible leg swelling-my legs were like tree trunks and I was of average weight and 5’4”. But with activity and lasix the swelling went down and walking and moving was much easier. I admit, I am competitive. So having short term and long term goals were also key for me. I bought a tshirt at Mayo that says ‘the comeback is stronger than the setback’ and went into full ‘comeback’ mode. There are tough days for sure, and setbacks, but I kept that journal every day for a year and by the end of the year the small steps forward greatly outnumbered the steps backwards each day.
I wish you lots of luck as you figure out what best motivates you on your journey to feeling better. My motivation was being able to ride my horse and travel again to see family and special events.
Hugs from Illinois!

Thanks and it's a bit of a long story but basically I had become to the point where my pacemaker was shocking me so much that I developed this form of PTSD and it was directed at the one device that in the early years saved my life a few times. But it something that's hard at times to explain and please understand I'm not at all suicidal and have never comptiplaited it but I had reached the point that I wanted God to take my life. I do believe that this is not everything there is to life and if I wasn't going to
Have the kind of life I wanted then I wanted it over. So when my doctor suggested, as a precaution to be ready if we ever needed it, to be evaluated for a transplant. We'll I was already in the hospital to try a few more ablation to fix my old heart and he said I arranged to get you over to Mayo for an evaluation. So off to Mayo clinic Phoenix for an eval. Well except for a few days after the eval I never left before I got the transplant. My heart was not responding to the latest ablation and it was going downhill fast. That was the first
Week of Dec 2017 and by Jan 2018 I had my new Heart. As I said during that 3 weeks I was getting shocked so much by my pacemaker they ended up shutting it off and just pumping me with drugs to keep my heart going. Still hoping to find the cause of my arrhythmias they even tried a MRI which usually is not an option if you have a pacemaker. So that's my story in a nut shell and honestly I don't know your feeling about God but I'm convinced he had his Hands in getting me the perfect Heart. So I need to close for now but can write again in a bit. Grandkids are calling