Relentless bile reflux / pain

Before my surgery I always had bad taste (and breath) and would choke all the time until I would gag. I had a horse voice and when Mayo did the Bravo study on me I had severe acid reflux. Did they do the Bravo capsule? I had been meds twice a day with no help. These meds are very bad for our health as they are now finding out and when you try to get off of them they cause a rebound which is worse then the reflux. It takes 6 weeks to get off them. After having the LYNX surgery I still had bad reflux and had to take meds until I weaned off them and changed my diet.

DGL is a form of licorice that has the ingredient that raises blood pressure removed. However, hawthorn berry does seem to work on mild causes of HBP from what I've read. (It works for me.) However, hawthorn berry is a good detoxer so be careful if you're taking other medication.

@saucy your diet sounds like Keto. If you have cut out fruits and vegetables do you eat only meat, and nothing else?

I pretty much have gone to carnivore diet. I eat a few vegetables that don't bother me as much but I do supplement.

I ended up having Roux en y surgery for my bile reflux fall of 2019. I had most of what you described including vomiting of bile towards the point of having surgery. I was told that this would then start eroding the esophagus lining, so really had no choice. But.....it has not been a cure. The antibiotics I took afterwards took out all my gut bacteria, which then caused SIBO. That took 2 months to get over which was a year ago. Then, 10 months of what I consider being back to normal, then things started up again. Dyspepsia now, since I have had my GB removed as well as this surgery which somehow has messed up the motility in my system. This past 2 months has been tough again, and I plan on posting here on that topic. So frustrating, just never seem to get clear of these issues. But again, surgery was the only option for me with my bile reflux. You may want to meet with a surgeon on this, I know some people who benefited a lot from this and didn't have ongoing issues like I've had.

Dr. Greg Bielman, Univ MN

I am out 8 years from having a Sleeve. I Have had 3 endoscopes over the past 3 years due to severe restriction with foods and swallowing. I have severe stage 4 esophagitis and bile acid in my pouch. I take Dexilant which stops the burning. I also have a hiatal hernia. I have a stricture in my esophagus as well which has been stretched during the endoscopes. I still suffer from nausea, vomiting and regertation of foods. I gained 52 lbs back after losing 95, I do understand that the weight gain may or may not have contributed to my current health status. I have made dietary changes and I have lost 18 lbs. So that is good. I have counseled with my primary Dr. and then with my local gastrologist. Both recommended me to the Mayo Clinic to meet with a Bariatric Dr. After meeting with Dr. Madura at the Phoenix clinic. I am proceeding with a revision surgery to a gastric bypass. I read those of you who have continued to have gastric issues after a revision surgery. I would like you to share your stories with me. My surgery is coming up soon. The Dexilant controls the acid burn but regurgitation continues to be an issue . I am really concerned about this decision and would like to hear from those of you who have successfully converted to the gastric bypass

Wow, my heart goes out to you. I am having major problems s/p surgery for para esophageal hiatal hernia repair (. Open). It was 3 years ago, symptoms never went away and got progressively worse. My primary ordered a barium swallow in March of 2021 which revealed a slipped Nissen and a new hiatal hernia. I am 76. I have for a surgeon who is willing to try a redo surgery , but after reading so much I wonder if it would be worth going through all of the complications it could bring me. You are so young, I hope you find some answers to your problems.

I had all the tests at Mayo you had, and nobody told me I had Crohn's Disease. Yeap, they thought I was fat and that I had IBS-D when in reality I had an autoimmune disease. I had MRIs and CTs and 3 admissions for bowel obstructions, and nobody thought I had Crohn's. I would have you go to at a University Medical Center, which basically said we think you have Crohn's because all your scans show obstructions and inflammation that isn't going away. They said: no, we don't think it's in your head because the scans don't look normal. It took a lovely intake PA in the gastro dept that took pity on me at a University Medical Center (U of MN) who helped me out. Now I had the same pain you talk about and it's from bile reflux from having my gallbladder taken out. I'm taking Welchol (works great but it's very constipating), chamomile tea (awesome) and I'm going to do a trial of Carafate to coat my stomach. In the meantime, I'm doing slippery elm, marshmallow root, omeprazole, no fiber because I have strictures but recently started a tablespoon of chia seeds (again for coating the stomach) and some Miralax to keep up with the constipation. I lost 20 pounds after all this started (involuntary) and now another 20 pounds from trying 2 X 8 weeks of exclusive enteral nutrition that worked really well also and helped with the inflammation. I use the chronometer app to track all the nutrients. I also take colostrum and l-glutamine and milk thistle for liver health.

There is a great book about this lady who have gastric bypass and she goes into detail on how she deals with her gastric bypass and issues with regurgitation and other things. She is an inspiration and a great resource for recipes and foods that are tolerated well: Before and after by Susan Marie Leach.