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Anyone have Laryngeal Sensory Neuropathy?

Ear, Nose & Throat (ENT) | Last Active: Feb 17 4:40pm | Replies (186)

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@johnbishop

Welcome @nitsirk, It must be really difficult having such a rare form of neuropathy. For others who might not know what it is...

"What is Wartenberg's migratory sensory neuropathy?
Migrant sensory neuropathy (Wartenberg's migrant sensory neuritis) is characterized by sudden numbness in the distribution of one or multiple cutaneous nerves. The limited number of published clinical studies seems to suggest that it is a rare disorder. Most studies included few patients and were retrospective."
---Wartenberg’s migrant sensory neuritis: a prospective follow-up study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2910306/

It's good that you found something that helps provide relief for acute attacks. Have you done any research on the condition?

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Replies to "Welcome @nitsirk, It must be really difficult having such a rare form of neuropathy. For others..."

But yes, I’ve been monitoring and researching this and my other weird disabilities since about 2005 with daily Google alerts of new stuff. When you’ve seen people at the highest level in the country and left them bemused, you’ve got to be your own expert! That and the NHS and a good GP and life is good, if limited mobility wise.