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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Feb 17 4:40pm | Replies (186)Comment receiving replies
Interesting. I think I get this sometimes. I have Wartenbergs Migratory Sensory Neuropathy, so can get any SN/SFN symptoms anywhere without notice for however long it feels like taking! I found gabapentin awful, as it screwed up my speech centres. I was on opiates and other painkillers and amitriptyline and citalopram, but have now almost cut out the opiates and paracetamol with medical cannabis. I have found 5 elements style acupuncture extremely good for acute attacks though, and can feel a a massive reduction (50-80% by area) the next day after a treatment. I sometimes literally draw lines round the affected areas to make my therapists life easier 🤣
Replies to "Interesting. I think I get this sometimes. I have Wartenbergs Migratory Sensory Neuropathy, so can get..."
wow, I’ve never heard of that . Hope you find peace with treatment ! I think natural treatment like cannibas is a good idea .. I’m not a fan of script drugs if at all possible for sure . Hope that helps you
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Welcome @nitsirk, It must be really difficult having such a rare form of neuropathy. For others who might not know what it is...
"What is Wartenberg's migratory sensory neuropathy?
Migrant sensory neuropathy (Wartenberg's migrant sensory neuritis) is characterized by sudden numbness in the distribution of one or multiple cutaneous nerves. The limited number of published clinical studies seems to suggest that it is a rare disorder. Most studies included few patients and were retrospective."
---Wartenberg’s migrant sensory neuritis: a prospective follow-up study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2910306/
It's good that you found something that helps provide relief for acute attacks. Have you done any research on the condition?