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Question to ask about MGUS Diagnosis

Blood Cancers & Disorders | Last Active: Jul 10, 2022 | Replies (17)

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@bens

I feel better reading these post from people that are in the same situation with this wait and see. I try and stick it in the back of my mind and not worry.
One thing that is curious how many medical people don’t know what MGUS
is. Having cataracts taken off in August, Doctor didn’t know what MGUS was
on my history. Told her to look it up. Will inform my hematologist if there is a reason to worry about MGUS and cataract surgery. Also in the future, knee
Replacement.
I go to the UW Wisconsin West Clinic, don’t know how they rate with MGUS, I’m fairly knew at this, have seen him only twice.
I’m wondering if they will work with Mayo, don’t know how to go about that.
Thanks for listening or reading.

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Replies to "I feel better reading these post from people that are in the same situation with this..."

Cataracts are, if you have any other signs with them, markers of developing Amyloidosis of some sort. Yes, they should be taken seriously, and watched carefully. Track them consistently, and learn whether they seem to be expanding their reach in any way. Also, track your various white cell issues. oldkarl

@bens, Mayo Clinic experts often work with local physicians and oncologists for continued cancer care. This may require an initial visit to Mayo Clinic, followed by treatment administered locally. Virtual visits may also be an option.

Here is more information about multiple myeloma care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/multiple-myeloma/outcomes/gnc-20514923

To inquire about options available to you, I suggest you start by contacting Mayo Clinic appointments for a phone interview with a scheduler. Here's more information on how to get started: http://mayocl.in/1mtmR63