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I was recently diagnosed with LBD with Parkinsonism: Any advice?

Parkinson's Disease | Last Active: Jun 5 8:34am | Replies (83)
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@sakoziar

I will check with our current dr. His specialty is autonomic dysfunction which is what we thought we were dealing with but found out it is most likely LBD. I know there are others who specialize in this area so I am hoping to make a change. I dont know how receptive Mayo is about this. Thanks for your message

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Replies to "I will check with our current dr. His specialty is autonomic dysfunction which is what we..."
Colleen Young, Connect Director | @colleenyoung | Jul 2, 2022

@sakoziar, Mayo Clinic will work with you to get the right specialists for your husband. I encourage you to submit the request with your current Mayo neurologist.

I also encourage you to follow the Dementia expert blog managed by Mayo Clinic Alzheimer's Disease Research Center in Rochester, MN. Click this link:
- Dementia Hub https://connect.mayoclinic.org/blog/dementia-hub/

Be sure to check out the Lewy Body Dementia Video Library https://connect.mayoclinic.org/blog/dementia-hub/tab/lbd-video-library/

This is a collection of videos from a Mayo Clinic event about LBD hosted for patients living with LBD and their care partners.

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