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Anyone have Laryngeal Sensory Neuropathy?
Ear, Nose & Throat (ENT) | Last Active: Nov 26, 2024 | Replies (191)Comment receiving replies
I have not been diagnosed with LSN but one of the ENT docs suggested this possibly .. after negative work ups on all gastroenterologist, speech therapy , endoscopy , pulmonary , ct scan etc.. started 6 years ago after an ear infection I had this phlegm cough and clearing my throat daily and constantly . It’s like 15 min wet cough with phlem attacks I’m 60 and in great health other than this . Tried every ent post nasal drip treatments , rinses decongestants , steroid sprays .. nothing has helped me . Trying to pin point triggers doesn’t work like ya read about either . there is no rhyme or reason it seems it’s a mystery to get the right diagnoses . It does as well become very depressing and hard not to be running to new docs as like the gastroenterologist I saw acted like there isn’t any proof of reflux to be causing this so just take flonase and ya be good .. that’s hard when ya feel like your loosing your mind and no one gets it 😢 especially when someone tells you it’s in your head .
Replies to "I have not been diagnosed with LSN but one of the ENT docs suggested this possibly..."
I hear you. Took me 4 yrs to find a diagnosis from an ENT. Since then took low level antidepressants, gabapentin, steroid shots in the vagus nerve in my neck, nothing really helped. I have found an over the counter cough syrup with Elderberry called Zarbee's which helps the cough...I take mostly at night so I can sleep a little. For the phlegm attacks I don't have any suggestions, thankfully I don't have that symptom. Acupunture? I've tried a little and it gave me back some energy, but it's 6 hrs away and I only had 2 treatments. If you have a chinese doc close by, you might try that. I've kinda given up on regular docs!!
Good luck!
A lot of us get it, unfortunately not the docs because there seems to be no solution. I’m on PPIs and allergy meds and still have coughing episodes throughout the day. Someone did post about gabapentin and a potential treatment called BLUE-5937 which sounds helpful.
I hav had the same problem as you for a time and i find vitamin c very good for this complaint 2000 mg a day .
Also what is great is organic Rosehip powder organic . Stay away from gluten and cows milk change your air conditioner filters every 3 months. It works .
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@deez61, It sounds like you've been through the wringer when it comes to trying to figure what is going on that is causing the wet cough and flem attacks. I know you have tried a lot of stuff and seen a lot of doctors who don't seem interested. I think you know your body and symptoms and it's too bad non of the doctors are in tune with what you are telling them.
I'm not sure where you have been seen but have you thought about seeking help or a second opinion at a major teaching hospital or health facility like Mayo Clinic? I think what is key in a difficult situation like yours is a health system with multidisciplinary teamwork and patient centered healthcare where a team of doctors work together to help the patient.
If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.