Anyone had colpocleisis surgery? I want to learn more

Posted by luftmensh1 @luftmensh1, Jul 3, 2021

What happened to the lady who was having significant bleeding problems 8 days after colpocleisis surgery?

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@colleenyoung

Welcome @sharnie. You'll notice that I moved your question about colpocleisis to this existing discussion in the Women's Health group:

- Anyone had colpocleisis surgery? I want to learn more https://connect.mayoclinic.org/discussion/prolapse-surgery/

I did this so you can connect with members like @luftmensh1 @lindygal @AlwaysHopeful who have had the procedure or are considering it.

Has this surgery been suggested for you, Sharnie?

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Yes it has. I will see the surgeon next week and will get more information on the surgery. Having a prolapse bladder is more painful than anything I could imagine, plus the bladder and bowel problems. I am so ready to have surgery and get relief!

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@sharnie

Yes it has. I will see the surgeon next week and will get more information on the surgery. Having a prolapse bladder is more painful than anything I could imagine, plus the bladder and bowel problems. I am so ready to have surgery and get relief!

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@sharnie, how did the appointment with the surgeon go? Have you been scheduled for surgery?

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@colleenyoung

@sharnie, how did the appointment with the surgeon go? Have you been scheduled for surgery?

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I was reassured by my visit with the surgeon. However, due to lack of medical personnel, my surgery will be 6-8 weeks away.

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I've never heard of colpocleisis. I've had prolapse surgery 3 times with the bladder sling surgery only with the first. Sadly, the prolapse surgeries all failed within a year, the last one failed in 3 mo. It is disheartening. Obviously I have a different urogynecologist now who watches me annually. I don't know if there will ever be a permanent solution.

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@donnacarp

I've never heard of colpocleisis. I've had prolapse surgery 3 times with the bladder sling surgery only with the first. Sadly, the prolapse surgeries all failed within a year, the last one failed in 3 mo. It is disheartening. Obviously I have a different urogynecologist now who watches me annually. I don't know if there will ever be a permanent solution.

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Where did you have the failed surgeries?

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The first was in Oklahoma City where I lived a the time. Dr. Dean Carpenter who has retired now. A darn good thing because my friend went for the same and he accidentally cut her bowel causing a medical emergency and months of dealing with a colostomy. Horrible. My 2nd surgery was in NYC by Jerry Blaivas, MD who didn't take my insurance and charged $18,000. He was highly recommended but don't use him if you can get better help. He ran a lot of tests in his office and beforehand that ran my expense up farther. By the way, no other doctor did so many tests that I knew weren't likely necessary. It took him nearly 8 hours to find the defect. Horrible again. The 3rd time was a Alan Garely, MD also in NYC who assured me he had never had a failure. That surgery lasted 3 months. Very disheartening. Thankfully, I have managed my bowel function so as not to become constipated at all which causes more discomfort. Some days the prolapse doesn't bother me - other times it does. I am mostly worried it will worsen. That friend who ended up with a perforated bowel still lives with hers that she says is very bad. Her colostomy was reversed and her bowel was repaired thankfully.

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I wrote that for my mother. She had the surgery at 93!!!! --- and did well, but then after going back on her blood thinner (5 days post-op) developed horrible bleeding. She did end up back in the hospital, including a blood transfusion, but is doing so well now, almost 2 months post-op!!

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It turned out that my mother was put back on her blood thinner too soon--5 days post-op--considering the extensive work the urology surgeon did for her significant prolapse. She almost passed out in the night, and had an ambulance ride to go back to the hospital for a blood transfusion, wait another week for the blood thinner to start, and now--2 months post-op is doing very well.

My mother did several weeks of work with a PT who specializes in pelvic floor work. I think this really helped her to have a great outcome so far.

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I had a prolapsed uterus removed in 1987. At that time, I also had a rectocele. I still have my ovaries and tubes. My bladder at the time, was fine. No prolapse. As the years passed by, I noticed a bulge at the opening of the vagina. Thinking that my rectum was prolapsing again, I went to the OBGYN. He said my bladder had prolapsed to a 4 and my rectum had prolapsed at a 3. I tried the pessary but if I pushed at any time, it came out. Dealt with it until I said "no more". It was too much of a pain to deal with. I had a cystocele with a bladder sling and rectocele done in June of 2020. They were performed vaginaly. In August of 2021, I felt the bulge again. Went to the OBGYN in January 2022. He said I had prolapsed again and referred me to a urogynecologist. She gave me 3 options. I am considering the colpocleisis surgery. I am 76 and not sexually active. I do have a question. If my rectocele fails at some point, how will that be corrected if I have this surgery? Also, I have been very fortunate of not ever having a kidney or bladder infection in my life. Will this surgery make it more difficult to detect those issues ever happen? Any other issues I should consider? Thank you!

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I will be having this surgery in August and that same question has been on my mind. But my condition now is so painful I will be going ahead with the surgery.

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