Connect
← Return to Want to talk about Multiple Myeloma: Anyone else?
Discussion
Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (414)Comment receiving replies
I am in So Cal too and will get bone biopsy to confirm or reject MM Dx. Multiple doctors ordered PETCT and dozens of Blood tests and are very suspicions of MM. If positive for MM then I wish for Mayo clinic oversight of my local Dr treatment plan and treatment itself. Is this done through staying at Mayo or is remote Telehealth practical? Who are the MM experts at Mayo? Will Original Meficare pay for Mayo and the treatments themselves? What is the on campus housing situation?
Replies to "I am in So Cal too and will get bone biopsy to confirm or reject MM..."
It does make one so anxious to be in diagnostic Limbo. When I first heard Multiple Myeloma mentioned as a possibility I consulted with Dr Google while I was waiting to get a hemotology/oncology appointment. Dr Google is big on worst case scenarios, it seems. That increased my anxiety a lot and I felt so lousy. I had trouble sleeping and lost 10 pounds before my first appointment.
I have, thankfully, an excellent HEM/Onc doc who spent lots of time explaining my bloodwork, what was good and what they would watch. I asked lots of questions and he was quite patient with me.
Once I had more balanced information I calmed down and immediately felt better.
Try to relax and do the things you love. I am wishing you the best possible outcome from your diagnostic workup.
@searcher2022, Mayo Clinic experts often work with local physicians and oncologists for continued cancer care. This may require an initial visit to Mayo Clinic, followed by treatment administered locally. Virtual visits may also be an option.
Here is more information about multiple myeloma care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/multiple-myeloma/outcomes/gnc-20514923
To inquire about options available to you, insurance questions and more, I suggest you start by contacting Mayo Clinic appointments for a phone interview with a scheduler. Here's more information on how to get started: http://mayocl.in/1mtmR63
Connect
@searcher2022 Welcome to Mayo Clinic Connect. I was nervous when going through the diagnosis stages for multiple myeloma. Living in Southern California, there are several excellent facilities to think about, including Keck USC, UCLA Medical Center, Cedars Sinai Hospital, in the Los Angeles area.
Included here is a link to Mayo Clinic Network Members, showing a map of locations that are part of that network: https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members
I was very fortunate to find a Mayo Clinic-trained doctor in my area, although it is a 2 hour drive each way. Still closer than heading off to Minnesota or Arizona! You usually can research and find the educational background of your chosen medical team.
Hoping for the best possible outcome for you. Do you have any questions I can answer?
Ginger