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I have Cerebral Small Vessel Disease: How are you coping?

Stroke & Cerebrovascular Diseases | Last Active: Oct 1 5:38pm | Replies (144)
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@angelicscripts

Diagnosed at 50 with small vessel cerebrovascular brain disease with an Arachnoid cyst..now 4yrs later its servere & put on statins also Asprin. Had a bad reaction to statins was only on them 9 days & had to stop them. Have weird & not so wonderful symptoms headaches vision issues fatigue gait & a lot of pain due to cervical spondylosis with osteophytes on all discs from C4 through to C7 with encroachment of nerves ( waiting on neurosurgeon) bladder & bowel issues. Last year had ischemic colitis & bleed out 8 days in hospital...many appointments had & more to come...just wondering if this cyst I have caused alot of my health issues it can not be operated on due to location & how deep it is . Short term memory hasn't been good for a few yrs but long term memory is brilliant...

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Replies to "Diagnosed at 50 with small vessel cerebrovascular brain disease with an Arachnoid cyst..now 4yrs later its..."
Amanda Roe | @amandajro | Jul 1, 2022

Hello @angelicscripts and welcome to Mayo Clinic Connect. I am sorry to hear of all of your complications in the last four years since your diagnosis.

You will notice that I have moved your post into an existing discussion on Cerebral Small Vessel Disease so that you may more quickly surround yourself with members who understand. The discussion can be found here for reference: https://connect.mayoclinic.org/discussion/i-have-vascular-small-vessel-disease-that-so-far-just-has-caused/

Members such as @keithl56 @kariulrich @hopeful33250 @helenfrances @avmcbellar and @oldsuzanne55 may be able to join and provide some much needed support.

Have you already consulted on your options for your cyst or just beginning that process?

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Teresa, Volunteer Mentor | @hopeful33250 | Jul 1, 2022

Hello @angelicscripts,

I'm really sorry to hear of the multiple health problems you are having now. I can see that you have tried different medications and treatments.

You said, "waiting on the neurosurgeon. Are you now considering spinal surgery to correct the disc issues?

You mentioned a bad reaction to the statin you were taking, If you don't mind sharing more, what type of side effects did you have?

I look forward to hearing from you again. Will you post updates?

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