Hello,
Thank you so much @sierrawoods for starting this thread and sharing experiences. Sierra's account of what she endured was almost exactly what I've been experiencing for almost 8 years, especially the adrenaline surges almost every night. I also began symptoms at the same age, 33, and am now 40. All seemed to begin after Epstein Barr, Dr.s were perplexed for a few years, then I "cured" and reversed everything for a couple years--unclear if all resolved due to higher Synthroid dose, sauna, or another unknown factors. All symptoms returned for the past almost 3 years after I had exposure to Aspergillus mold for 1.5 years. However, I have been away from it for another 1.5 years with no improvements in symptoms. I'm female, hypothyroid, redhead, lactose intolerant, healthy diet, no current lactose, gluten, or caffeine. Since the start of this all, I've developed chronic autoimmune hives, mast cell activation, heightened allergic responses, heart palps, unexplained significant weight gain, low A1C, etc.
In any case, I wanted to focus on what seems to be emerging as one of the core issues and see if this resonates with most people writing in now....
While Epstein Barr seemed to have preceded all, the ADRENALINE rushes / surges, mainly all night (sometimes seeping into daytime), seem to be due to REACTIVE HYPOGLYCEMIA. This seems to be affected by Synthroid (levothyroxine) dosing. Also, increased exercise at any time during the day worsens adrenaline at night. While my TSH numbers have often been in near ideal range, tweaks to Synthroid dosing have lessened adrenaline at many points in time, even when they made TSH #s too low (implying too much Synthroid).
My theory is that I have inability to detox due to blockages mold created and/or due to something virus/Epstein Barr-related, so that Synthroid doesn't get to all the sources that need it, even if TSH registers on labs as "normal." (I realize the general TSH range is wide, so by normal I mean very ideal, close to 1.0, with T3, T4 also at good points.) I worry that to have enough Synthroid absorbed to lessen hypoglycemic episodes and resulting adrenaline surges to raise blood sugar, I'd have to take too much Synthroid for my body as a whole, since my TSH has been well under 1.0 when Synthroid worked to lower adrenaline last time. If my theory is correct, then if there is a way to get Synthroid to where it needs to be (e.g., by detoxification from mold) *without overmedicating,* it seems that would be helpful.
I hope those who wrote in have found helpful fixes and are feeling much better. If anyone has confirmed that hypoglycemia was at the core of their adrenaline and, better yet, discovered what the root cause was, that would be very interesting.
@sierrawoods @cehunt57 @lisalucier @kdubois @jigglejaws94 @camik @chocolate5lover @veeravee @libjen @jenniferg27 @astaingegerdm @realanswers @aclmalibu @b808 @adrianyepez
P.S. Don't know if this factors into issues with blood sugar, but I was also diagnosed "fructose intolerant," after formal testing (multiple-hour breath testing after ingesting fructose).