1. < Polymyalgia Rheumatica (PMR)

PMR flare without a dose reduction

Posted by skiing @skiing, Jun 14, 2022

I have had pmr for 1 year now I reduced to 8 mg by last December when I had my first flare. I went up to 15 mg and reduced again to 10 mg then .5 mg per month. A couple of days ago I was at 8.5 mg and had been for almost a month with no issues. 2 days ago my lower back was sore then my left shoulder and now my right.
I have been doing yard work and golfing. I have seen my dr who ordered a crp blood test and tomorrow will see my physio. Should I increase my dose to 13. 5 for a week or so then go down to 9 mg and start again the taper at .5 mg per month. My dr thinks this should work and leaves this up to me as he knows I am conscientious. Looking for this group’s suggestions

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Teri | @tsc | Jun 28, 2022
In reply to @milld835 "I'm due to drop from 13 mg to 12 mg today and I in no way..." + (show)
@milld835

I'm due to drop from 13 mg to 12 mg today and I in no way feel ready for that. I've been sore through upper back and neck, back of thighs and this morning backs of arms started up. The weather here is so damp and humid last few days, which does not help. Not saying that this will continue, but I do not feel well enough today to do this and I'm already behind in the Rheumatologist's taper schedule, because I had to go up a bit from 12.5 to 13, two weeks ago (at which I only felt slightly better). I'm a believe in let your body do the talking. Ugh.

Jump to this post

Hi @mild835, my rheumatologist told me to advise him of any changes in my symptoms when I started to taper and go back to the previous dosage for a couple of weeks, then try the taper again. The schedule may be good for your Rheumatologist, but not so great for you. We're all different and our bodies don't always react according to plan.

REPLY
1 reply
milld835 | @milld835 | Jun 28, 2022
In reply to @tsc "Hi @mild835, my rheumatologist told me to advise him of any changes in my symptoms when..." + (show)
@tsc

Hi @mild835, my rheumatologist told me to advise him of any changes in my symptoms when I started to taper and go back to the previous dosage for a couple of weeks, then try the taper again. The schedule may be good for your Rheumatologist, but not so great for you. We're all different and our bodies don't always react according to plan.

Jump to this post

Thanks for this. I decided to drop down 1/2 mg. for a couple of weeks and then maybe the drop to 12. Feel more comfortable doing it this way. She was not the most "congenial" Rheumatologist and even though her reviews are terrible, I decided to go in with an open mind. She lived up to the reviews. I don't see her for another 3 months, so time to shop around. Take care.

REPLY
View MoreView Less
Please sign in or register to post a reply.