Welcome @heatchad. It's encouraging to hear that you've been referred to a facial pain specialist. I'm going to bring @loribmt into this discussion to see if she has any suggestions or experience.

I might suggest as you wait for your appointment with the specialist that you start a journal or taking notes about your symptoms. When did it start? What time of day are the symptoms worse? Are there triggers that make the symptoms worse, i.e., food, activities, stress?

This may help you and the specialist to identify patterns that could help with the diagnosis.