@ajidzior I am so sorry that you’re having these problems; i honestly don’t know what to tell you. Have you been to a major medical center or a university medical center? They are more used to difficult problems.
You mentioned that you reached out to Mayo Clinic—-have you contacted the hospitals ‘care network’?
https://mayoclinic.org/about-mayo-clinic/care-network/members
This is a group of hospitals that work closely with the Mayo Clinic.
Please don’t give up. Other members here, and myself, will try to help as much as we can.