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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Aug 12, 2023 | Replies (196)
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@bsnodgrass

Have any of you been diagnosed with Stiff Person Syndrome? If so, what treatments/medications do you use?

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Replies to "Have any of you been diagnosed with Stiff Person Syndrome? If so, what treatments/medications do you..."
Colleen Young, Connect Director | @colleenyoung | Jun 25, 2022

Welcome @bsnodgrass. I moved your question about treatments and medication that help stiff person syndrome to this existing discussion:
- Stiff Person Syndrome: Want to connect with others: https://connect.mayoclinic.org/discussion/stiff-person-syndrome/

I did this so you can connect with others with SPS like @sheeva888 @krb65 @franksgirl210 @bjm5501 @southerncharm @terlato @rivermaya34 and more. Click the link to read all the posts.

@bsnodgrass, when were you diagnoses with SPS? What treatments have you tried?

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sheeva888 | @sheeva888 | Jun 25, 2022

Hi! I currently am taking Diazepam/Valium, Gabapentin, and get IVIg treatments every 5 weeks (3 days in a row each time). I also use medical marijuana. I do my own physical therapy, exercise and stretching. I also use heating pads on my neck/back and one leg. I find heated massage guns and trigger point massage tools to be helpful with my legs. Hot tubs, steam rooms, saunas and epsom salt sensory deprivation floats are helpful. I am also part of a bi-weekly support group call a friend found for me from one of the Facebook groups.

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