Hi
I’ve had LSN for several years and like you I was getting worse whilst going through multiple tests to finally get a diagnosis from a neurologist and respiratory physician. At one stage I was ventilated because of a severe intractable laryngeal spasm.
I take gabapentin which does work to some extent however I’ve got the greatest benefit from CPAP normally used for sleep apnoea. The theory is that it splints the larynx whilst you sleep and over time retrains it.
I also have several
Other neurological conditions being treated by an immunologist, neurologist and ENT and am looking at a complete change of therapies.
I hope you get some relief