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@pamh480

Turned out the cold progresses to pneumonia and there is a fungal infection. Struggling with insurance not covering the $1900 a month to pay for the med. to top of all odd I have a loop monitor Thad migrated under my akin and is painful and has caused a huge hematoma. They are reluctant to remove. I am pretty adamant because chest skin is so fragile I’m afraid it will pop out. I can feel the edges of the device. I cynically wonder if they are penalized financially for not keeping it in place and monitoring for 2-3 years. And I am in the middle of a big skin gvhd flare

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Replies to "Turned out the cold progresses to pneumonia and there is a fungal infection. Struggling with insurance..."

Oh my gosh, Pam. That’s a lot to handle. If you continue to run into roadblocks with insurance regarding coverage for the medication, might there be a patient financial assistance program associated with the drug manufacturer?

Oh wow, Pam. My heart goes out to you with all you’ve got going on right now! I sometimes wonder the logic behind insurance companies not paying for certain necessary meds when ending up in the hospital would be a lot more costly! I sure hope you get that worked out soon!

That loop monitor sounds troubling. They’re supposed to be pretty much undetectable and yours certainly isn’t. I don’t understand why it can’t be removed. Who would be penalized financially? If it’s not in the correct position and causing further issues, it really should be relocated.

None of this stress is helping your gvhd situation either. Do you find you get more flares when you’re ill or under pressure? Do you have to take more prednisone when it happens?