1. < Neuropathy

Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

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Jane | @darlingtondoll | Feb 6, 2020
In reply to @rwinney "Ahhh yes, I too have gone through this. Is yours because of sunburn feelings or just..." + (show)
@rwinney

Ahhh yes, I too have gone through this. Is yours because of sunburn feelings or just overall irritation? I'm sorry you have to endure it. One of the many examples the disease is so bizarre and unpredictable. My odd feelings and sensations have settled a bit since last year but now jeans are off the table. I wear mostly athletic pants for loosness and comfort. I went through the shorts period too but luckily that has subsided and hopefully it will for you as welI. I have changed out my shoes, socks and clothing to adjust to my needs.More reasons why I refer to SFN as being layered.

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I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years now. They are very cute, so if I have to answer the door, no one would suspect that they are pajamas. From the waist up I look normal. I have a cute top and I wear jewelry and makeup. My hair is always combed and curled. I need to feel as nice as I can for a woman of my age.

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2 replies
lturn9 | @lturn9 | Feb 6, 2020
In reply to @rwinney "May I ask how you were diagnosed with CIDP?" + (show)
@rwinney

May I ask how you were diagnosed with CIDP?

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This happened back in the late 90's and about all I recall is the Spinal Tap to make sure it wasn't Multiple Sclerosis, and there were lots of blood tests but I think my Neurologist was very good at diagnosing. We also spent lots of time trying different meds and he referred me to an Anesthesiologist to manage my pain. I was also told CIDP is related to Guillain-Barre syndrome. I was told CIDP is mostly pain while G-B Syndrome can also cause muscle loss in the legs. Sorry I can't recall more...

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020
In reply to @lturn9 "This happened back in the late 90's and about all I recall is the Spinal Tap..." + (show)
@lturn9

This happened back in the late 90's and about all I recall is the Spinal Tap to make sure it wasn't Multiple Sclerosis, and there were lots of blood tests but I think my Neurologist was very good at diagnosing. We also spent lots of time trying different meds and he referred me to an Anesthesiologist to manage my pain. I was also told CIDP is related to Guillain-Barre syndrome. I was told CIDP is mostly pain while G-B Syndrome can also cause muscle loss in the legs. Sorry I can't recall more...

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No, this is great information. I was interested if the spinal tap showed positive for immune deficiency or other deciding factors confirmed diagnosis. Im glad no MS was found. Have you ever received plasmapherisis (exchange) or IVIG?

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lioness | @lioness | Feb 6, 2020
In reply to @darlingtondoll "I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years..." + (show)
@darlingtondoll

I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years now. They are very cute, so if I have to answer the door, no one would suspect that they are pajamas. From the waist up I look normal. I have a cute top and I wear jewelry and makeup. My hair is always combed and curled. I need to feel as nice as I can for a woman of my age.

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@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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3 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 6, 2020
In reply to @darlingtondoll "I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years..." + (show)
@darlingtondoll

I have been wearing these shorts (they are actually colorful pajama bottoms) for almost eight years now. They are very cute, so if I have to answer the door, no one would suspect that they are pajamas. From the waist up I look normal. I have a cute top and I wear jewelry and makeup. My hair is always combed and curled. I need to feel as nice as I can for a woman of my age.

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Atta girl! You are a woman after my own heart. One thing that reeeerally bothers me is that my shoulders and arms don't have the strength to be held up in order to style my hair anymore. Sounds trivial, I know, but that was a big pleasure to me in life. I let it air dry now and wear baseball hats alot. I'm happy enough to just get by washing it through struggle. Makeup....ehhh, very little...enough to cover up age/sun spots! Not worth the pain. Sorry, gentlemen out there...us girls gotta vent! 😊

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Jane | @darlingtondoll | Feb 6, 2020
In reply to @lioness "@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones..." + (show)
@lioness

@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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I don’t remember. I got them on line. Maybe at Amazon???

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1 reply
Jane | @darlingtondoll | Feb 6, 2020
In reply to @lioness "@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones..." + (show)
@lioness

@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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The brand name is Toast and Jammies

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Jane | @darlingtondoll | Feb 6, 2020
In reply to @lioness "@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones..." + (show)
@lioness

@darlingtondoll Where did you find them Ive been looking for the p.j's but all the ones I found look like p.j.'s I like the shorts I'd appreciate a reply . Thanks

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Amazon has some called Hotouch women’s pajama set. They look cute. I am ordering the lemon set.

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lioness | @lioness | Feb 6, 2020
In reply to @darlingtondoll "I don’t remember. I got them on line. Maybe at Amazon???" + (show)
@darlingtondoll

I don’t remember. I got them on line. Maybe at Amazon???

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@darlingtondoll Thanks I,LL look on Amazon

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1 reply
maryv449 | @maryv449 | Feb 6, 2020
In reply to @lioness "@darlingtondoll Thanks I,LL look on Amazon" + (show)
@lioness

@darlingtondoll Thanks I,LL look on Amazon

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I am sorry, I thought this was about neuropathy and have passed on tips not clothes. this is not what I am looking for to talk about.

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