1. < Neuropathy

Burning Feet syndrome

Posted by ndovu @ndovu, Mar 17, 2012

Hi everyone! Am 40yrs man in Africa - Country. Kenya. In 1993 aged 22 and in college, I developed burning feet. So hot have been my feet that I've not worn closed shoes all those yrs
All tests done over the yrs -,including blood sugar, pressure, vitamin test, nerve endings test etc. All have been negative. I'm generally healthy, with no major problem. I need anyone who has had such a problem and got help to help.

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johnhans | @johnhans | Feb 4, 2020
In reply to @martinsmckinney "Hello Everyone, I was diagnosed with PN 12 months ago. Within the past two weeks, my..." + (show)
@martinsmckinney

Hello Everyone, I was diagnosed with PN 12 months ago. Within the past two weeks, my left foot is red and swollen when I wake and gets redder and more swollen throughout the day.
Two questions:
In your experience does this ebb and flow or just get worse over time?
Also, we are purchasing a three-level town-home in a few weeks. Does anyone with these feet issues have trouble going up and down stairs?
Thank you kindly for your support and direction.
Martin

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@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy you lose the feeling in your feet and thus can have trouble balancing. This can lead to falls which on stairs would not be good. If going stairs, a handrail that you grip well and then walk slow and careful would at least the minimum to do. Also neuropathy can cause weakness in the legs making it hard to climb stairs. I have not been able to go stairs for years because of my neuropathy.

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3 replies
martinsmckinney | @martinsmckinney | Feb 4, 2020
In reply to @johnhans "@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy..." + (show)
@johnhans

@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy you lose the feeling in your feet and thus can have trouble balancing. This can lead to falls which on stairs would not be good. If going stairs, a handrail that you grip well and then walk slow and careful would at least the minimum to do. Also neuropathy can cause weakness in the legs making it hard to climb stairs. I have not been able to go stairs for years because of my neuropathy.

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Thank you John. Will contact the doctor this morning for an update.

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iceblue | @iceblue | Feb 4, 2020
In reply to @johnhans "@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy..." + (show)
@johnhans

@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy you lose the feeling in your feet and thus can have trouble balancing. This can lead to falls which on stairs would not be good. If going stairs, a handrail that you grip well and then walk slow and careful would at least the minimum to do. Also neuropathy can cause weakness in the legs making it hard to climb stairs. I have not been able to go stairs for years because of my neuropathy.

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I agree with the suggestion to see your doctor. And - see him/her when your foot is red and swollen so they know what you are dealing with.

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lioness | @lioness | Feb 4, 2020
In reply to @johnhans "@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy..." + (show)
@johnhans

@martinsmckinney PN should not make your foot swell. I would advise seeing a doctor. With neuropathy you lose the feeling in your feet and thus can have trouble balancing. This can lead to falls which on stairs would not be good. If going stairs, a handrail that you grip well and then walk slow and careful would at least the minimum to do. Also neuropathy can cause weakness in the legs making it hard to climb stairs. I have not been able to go stairs for years because of my neuropathy.

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@martinsmckinney I agree with above on seeing Dr One thing my that helps with burned ng feet is put them on a ice bag then massage them

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martinsmckinney | @martinsmckinney | Feb 5, 2020

Thank you all for your guidance! Met with Dr. yesterday who prescribed antibiotics. Apparently I developed an infection in my foot.

Sure appreciate your help 🙂

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1 reply
johnhans | @johnhans | Feb 5, 2020
In reply to @martinsmckinney "Thank you all for your guidance! Met with Dr. yesterday who prescribed antibiotics. Apparently I developed..." + (show)
@martinsmckinney

Thank you all for your guidance! Met with Dr. yesterday who prescribed antibiotics. Apparently I developed an infection in my foot.

Sure appreciate your help 🙂

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@martinsmckinney I am so glad you got to the doctor and were treated. I wanted to add that it took me years to get to the point where I could not go stairs due to weakness. I do want to emphasize the need to be very careful going on stairs. Thank you for keeping us informed.

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1 reply
iceblue | @iceblue | Feb 5, 2020
In reply to @johnhans "@martinsmckinney I am so glad you got to the doctor and were treated. I wanted to..." + (show)
@johnhans

@martinsmckinney I am so glad you got to the doctor and were treated. I wanted to add that it took me years to get to the point where I could not go stairs due to weakness. I do want to emphasize the need to be very careful going on stairs. Thank you for keeping us informed.

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I have burning foot syndrome and have no problems on stairs - which is good because our home is 3 stories and I am on every floor every single day. When I was diagnosed I asked the Neurologist if SFN would eventually impact my mobility, and he assured me that it would not. I would be interested to hear from other people who have SFN to know if it impacted their mobility. Did my doctor provide me with incorrect information?!?

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 5, 2020
In reply to @iceblue "I have burning foot syndrome and have no problems on stairs - which is good because..." + (show)
@iceblue

I have burning foot syndrome and have no problems on stairs - which is good because our home is 3 stories and I am on every floor every single day. When I was diagnosed I asked the Neurologist if SFN would eventually impact my mobility, and he assured me that it would not. I would be interested to hear from other people who have SFN to know if it impacted their mobility. Did my doctor provide me with incorrect information?!?

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Oh SFN has indeed effected my mobility. That is a blanket statement which can not possibly apply to everyone.

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1 reply
iceblue | @iceblue | Feb 5, 2020
In reply to @rwinney "Oh SFN has indeed effected my mobility. That is a blanket statement which can not possibly..." + (show)
@rwinney

Oh SFN has indeed effected my mobility. That is a blanket statement which can not possibly apply to everyone.

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Thanks @rwinney - in what way does it impact your mobility?

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 5, 2020

Muscles have weakened making it difficult to walk at a normal pace or more than 10 paces without resting. Use of muscle (in my case full body) sends me into flares which consist of burning, aching, throbbing, stabbing , spasms, twitching and pain. Somedays are worse than others of course but I have known and felt my body dying a slow death for over a year now. I use wheel chairs for distance, mats for cushion, alot of heat packing. Made adjustments to cabinets for things to be on low shelf bc I can't reach or lift arms without paying the price. I do stairs very slow with breaks or crawling and plan my trips within my home as to prevent too many up and down the stairs. Work smarter not harder! I say this with ease now... but, look back through my earlier posts and you may find some panic in my voice. Scary stuff. I feel my decline each year and am in fear of where it will end. We are all so very different so dont judge you by me, but it helps to hear what may be the truth for some.

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