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Chemo treatment journey: He's so tired. Hard to be cheery

Caregivers | Last Active: Jul 8, 2022 | Replies (19)
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@vparr1

Hi Barbara,
Your husband is still responding to the Whipple results. It took me a couple of months to adjust, though I had no additional post surgery problems you describe. The chemo I'm getting (infusion plus a 2 day pump I wear) is brutal. I always feel that the medical folks all over do the chemo formulas...too hard, too much in favor of giving too little. They worry about ineffective, though no one seems to be able to say what is appropriate for us personally. I will have my 4th (of 12 ) round tomorrow and I am frightening I will be so weak I can't eat or really ever get rest. I will be happy if I make it to 6 total rounds bc the third one almost did me in. I got a one week rest and feel much better again. Slight tweaking was done to chemo cocktail. Hope that helps me tolerate the next couple of infusions. Your husband will need to be well to take the chemo. I'm 75. Maybe he's a lot younger? Vera

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Replies to "Hi Barbara, Your husband is still responding to the Whipple results. It took me a couple..."
baeph | @baeph | Jul 4, 2022

He is 72. This is a nightmare, as you know Vera. I’m so sorry you have to take this route. Do you think
the chemo is the wrong cocktail for you? How do we even access that information. I hope you have good support-we do from friends and family but we have yet to find support from the medical community that profits from his treatments (actually lack thereof)
I’m really angry and we will make some more informed decisions this week by speaking with different doctors.

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baboinwv | @baboinwv | Jul 8, 2022

Barbara, First off God bless you and make you well! My son has Stage IV metastatic adenocarcinoma and he is taking the Folfirinox chemo recipe. He’s on his 3rd treatment and he’s just really wiped out! He said he has to dig really deep to make himself go back. He’s lost considerable weight and I pray he doesn’t lose so much they discontinue his treatments! I try to get him to eat but he is so nauseous he can’t eat even with the nausea medicine he takes. He has mouth sores and everything has a metallic taste. I’m wondering if you got a terminal diagnosis or if you were operable?

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