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@denisemarys

I was diagnosed with collagenous colitis 15 years ago. Daily imodium kept it under control until I contracted C-Diff three years ago that kept coming back until I had it for six months, then imodium did not work. I went through all of the suggested treatments, including budesonide, and nothing worked to stop my eight or nine bowel movements a day until I was put on Colestipol. I take one imodium and one Colestipol per day to control my symptoms and I watch my diet. I basically eat the Mayo Clinic recommended diet, gluten free, lactose free, lean protein, very low fiber, etc.. I take Cymbalta and that probably contributes to my intestinal problems, but I am unable to get off SSRI's because nothing else helps my depression. I'm glad someone brought this up because it is very rarely mentioned and there is not a lot of support available. Thank you!

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@denisemarys
I was diagnosed with collagenous colitis 13 years ago. I was initially treated with methotrexate for a month. It worked- diarrhea stopped.
Since then I have had on and off episodes. 2915 I started immunosuppressive Imuran. Worked very well, but I got many serious infections and stopped after 7 months. I remained okay until a couple of years ago, when symptoms recurred, maybe not identical
, but now seriously affecting my quality of life.
Plan now is getting a referral from my internist to my local gastroenterologist about starting treatment again. Can’t wait!