Thanks, I’ll check this all out. I have a few calls out but no success so far.
Mayo won’t take me.
April 2020 my PCR was negative and they diagnosed me from symptoms, even a year later. The long hauler started after the vaccine. My body went into some hyper immune response, they think. So again, no PCR to prove it. This year, I did a home test. Never thought that would backfire. Should have gone in for a Pcr I guess. All these free home tests, thought I’d use them!!
Gosh, I never thought I’d be back in this place either with my health I guess. So again, no PCR.

They called me back to say I could get an antibody test and wait 90 days and then call for an appointment. Meaning, I could spiral downward again like last year. Debilitating.

I know this sounds negative. I’m just losing hope. I’m very frustrated and it’s hard to feel this rotten. I can’t be the only healthcare worker that had COVID with a negative PCR. I can’t be the only person who experienced long haulers early on like this, after the vaccine. Again, a healthcare worker that was asked to get it in January 2021. I can’t be the only 43 year old working mom of 3, our family depends on both our incomes, to get COVID again and have to go through this. We are just getting back on our feet. Lost income from COVID related lay offs, lost income from my illness last year, medical bills etc. it’s just frustrating. I’m sure they have to have rules bc they are swamped at these clinics with unnecessary consults or something idk. Or maybe I don’t meet the criteria for the research studies? I don’t know. I get it I guess. They have to have rules. It just feels like there’s no hope in my neck of the woods. My providers don’t have anywhere to send me. I had to find the places. They are excited I’m finding them but never thought we’d hit road blocks like this I guess.