Thank you for that response. I have every sympathy for your daughter. I know that the doctor has continually ignored my own PA. It runs in my family and we have all suffered with the total ignorance of doctors, including my present one.
I am suspicious that your daughter has something other than PA , she does need to find (difficult) a specialist who can listen (YES,LISTEN !)to her various needs some of which do not seem to be related to lack of intrinsic factor. which produces PA. Try to find one of the more major hospitals that might have better specialists who can help her. I will eventually track down someone who knows what they are talking about..in the end I can ask my family doctor in Englaand who treated my mother. Love and blessing for you all, from ME