My daughter has PA because of given a proton to heal an ulcer, which affects your B12. She has b12 shots usually every 3-4 months or when she can tell. It was passed on to her two children so is heredity. She now wears a very heavy mask only when she goes out, usually alone. Crowds affect her because of smells, no perfumes or smells of any can cause a seizure. You have nerve damage. Heart palpitations but doesn’t go to a Dr. About it. Just live with it. There is no cure. Certainly blood thinners or blood transfusions wouldn’t help. You need B 12 shots. My daughter has to take B12 that’s pure. Her kids can take genetic B12. It’s a daily struggle and gets worse as you age. She seizures a lot when people use heavy perfumed clothes conditioners like Gain and she accidentally goes on her balcony and smells it and forgot to put on her mask. She wears a badge telling people her problem because they stare etc. But not bad when everyone wore masks which I still do ! She has a pill she can take so she doesn’t seizure when going to the dentist for example. But very addictive and she used too many and was very sick weaning off it. I don’t remember the name. Some are worse off. They can’t even leave their house. Hope this helps.

Jump to this post