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Pernicious anemia

Autoimmune Diseases | Last Active: Apr 29 9:19am | Replies (31)

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@june22

My daughter has PA because of given a proton to heal an ulcer, which affects your B12. She has b12 shots usually every 3-4 months or when she can tell. It was passed on to her two children so is heredity. She now wears a very heavy mask only when she goes out, usually alone. Crowds affect her because of smells, no perfumes or smells of any can cause a seizure. You have nerve damage. Heart palpitations but doesn’t go to a Dr. About it. Just live with it. There is no cure. Certainly blood thinners or blood transfusions wouldn’t help. You need B 12 shots. My daughter has to take B12 that’s pure. Her kids can take genetic B12. It’s a daily struggle and gets worse as you age. She seizures a lot when people use heavy perfumed clothes conditioners like Gain and she accidentally goes on her balcony and smells it and forgot to put on her mask. She wears a badge telling people her problem because they stare etc. But not bad when everyone wore masks which I still do ! She has a pill she can take so she doesn’t seizure when going to the dentist for example. But very addictive and she used too many and was very sick weaning off it. I don’t remember the name. Some are worse off. They can’t even leave their house. Hope this helps.

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Replies to "My daughter has PA because of given a proton to heal an ulcer, which affects your..."

Thank you for that response. I have every sympathy for your daughter. I know that the doctor has continually ignored my own PA. It runs in my family and we have all suffered with the total ignorance of doctors, including my present one.
I am suspicious that your daughter has something other than PA , she does need to find (difficult) a specialist who can listen (YES,LISTEN !)to her various needs some of which do not seem to be related to lack of intrinsic factor. which produces PA. Try to find one of the more major hospitals that might have better specialists who can help her. I will eventually track down someone who knows what they are talking about..in the end I can ask my family doctor in Englaand who treated my mother. Love and blessing for you all, from ME

Thank you for the hug. Much appreciated. 🤗 hug back to you. 💕

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