← Return to I am looking for others diagnosed with microscopic colitis

Discussion
Comment receiving replies
@longslowprogress

Unless someone has actually lived with microscopic colitis, they have absolutely no concept of or appreciation for the impact of this condition has on ones life. I have had it for 23 years. Budesonide could only be taken for 9 weeks. I would have thought once the inflammation was “healed” My elimination would have returned to normal. But even with rigid and strict dietary changes, I am back to full blown MC daily and nightly. Have tried the Budesonide route twice over a period of years and am considering it again, but very hesitant because it provides no lasting positive outcomes. I have had additional testing done. Thankfully there are no other medically identified digestive challenges. My best outcome so far is the Paleo diet. Not my preference, but I do get some relief. Also know your own trigger foods. What I eat does seem to matter a LOT!

Jump to this post


Replies to "Unless someone has actually lived with microscopic colitis, they have absolutely no concept of or appreciation..."

I totally agree, makes no difference what I eat, a piece of celery or a large hamburger, results are the same. The only thing that's helped is the infusion therapy in controlling the diarrhea. Still suffer from severe cramping 24/7 and fatigued all the time. I've lost a lot of weight, over 50 lbs and I'm a small woman to begin with. Don't know at what point weight loss becomes dangerous.