← Return to JAK2 Mutation - Effects and Questions

Discussion

JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

Comment receiving replies
@lag630

Yes, at Centerstone Plaza. I stayed there for his splenectomy. Although they provide free shuttle service, I found I could walk to Methodist ( once I figured out the lay of the land) in 10 minutes. I highly recommend this hotel as an option for lodging.
Did you use a shower chair during your 100 days? I thought I’d also bring a wheeled walker…

Jump to this post


Replies to "Yes, at Centerstone Plaza. I stayed there for his splenectomy. Although they provide free shuttle service,..."

Oh good, I’m glad you’re near the clinic. That helps. And Rochester is such a lovely city for a daily stroll. ☺️

I didn’t use a shower stool but that’s a very good idea. Those first couple weeks your husband will be feeling very weak. That’s normal, just so you are aware.
He’ll also need to apply a protective covering over his port before showering, called Aqua Guard. (This will all be talked about during this week coming up in the educational classes. All of the products can be bought at the Mayo Clinic store near the cafeteria)
Those early weeks, just putting that covering over the port took all my strength and so, standing to take the shower was exhausting! A shower stool would be very helpful!

A wheeled walker is another great idea for stability and will be very handy for your house and for visits to the clinic. As he regains his stamina and you take walks outside that will allow him to build up some muscle strength again without worrying about falling and he can stop to rest without leaning on a tree. ☺️

Again, those first couple weeks, with the weakness he’ll be experiencing, he’ll might also need a wheel chair. As you’ve seen at the Clinic, they are everywhere! They are yours to use during the duration of your husband’s stay in Rochester and can be taken back and forth from the clinic. But the wheeled walker, if it has a seat will be perfect!

I wish you both the best during this time. It’s a journey like no other. It’s a second chance at life and well worth the effort during the trek.