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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)Comment receiving replies
Hi, Just wanted to provide an update. We are going to Rochester next week for extensive testing to see if my husband will be able to handle the chemo and BMT. Home for a week and then back to Rochester to place port, 5 days of chemo, then BMT on July 14. Here we go!
Replies to "Hi, Just wanted to provide an update. We are going to Rochester next week for extensive..."
Can’t think of a more fabulous place to be for uplifting healing. There is much art to discover. Stop at each floor and get out to discover ethnic art near the elevators, glass art illuminated near the big windows, the large Miro prints near where your husband will check in for blood testing, Chinese Imperial Ceramics collection in display cases on the way to that lab.
May both of you allow yourselves to observe and appreciate this in depth.
And you won’t starve. There is a good cafeteria, and other places to eat in other non-Mayo establishments nearby.
Following the guidance of Mayo’s travel helper, ($25 extra) I stayed on the consierge floor of one of two hotels which have them. It was interesting to get acquainted with others in these more intimate spaces during included breakfasts and dinners. When I needed to stay longer than planned, using their travel helper meant Delta could not charge me extra to flight dates.
Wishing both of you well in your husband’s healing adventure.
Good morning! Just checking in to see how the week in Rochester went for your husband! (And you!). It was the week of pre-transplant testing and I know from experience that can be pretty exhilarating along with a little tiring. 😉Impressive though, isn’t it? Mayo-naised:the blender of medical tests and procedures!
Are you all ready for the long haul? Any last minute things I can help you with?
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Oh wow, here we go, huh?! That will be an ambitious week. I remember looking at my portal filled with all those appointments and wondered how I’d get through the week Didn’t they know I was an old woman with cancer? 😅 Three years ago this week, in fact, was my pre-BMT testing with my transplant being June 28. Time flies!
But it all runs like clockwork! Your husband is about to be Mayo-naised, as we call that experience in my family. Mayo is a place like no other and he can’t be in better hands. I’m here for you any time there are questions or concerns! Don’t hesitate to contact me. ☺️
Make sure you bring snacks, water and iPad, or books to read while waiting during the appointments. The days are a little long for both of you.
I know you have a nice rental for the long stay, but are you nearby the clinic for this week? Do you have any last minute questions?