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Pernicious anemia

Autoimmune Diseases | Last Active: May 15, 2023 | Replies (19)

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@ellasgirl13

Thank you for your reply. I know from my mother's long journey trying to find a specialist that not all doctors are created equal when it comes to Pernicious Anemia. She went to some of the finest hospitals in London and was prescribed iron pills or folic acid. That did no good and was absolutely the wrong diagnosis. As a child she had to consume raw liver several times a day, but it kept her alive, at least. It was a relatively recently graduated Doctor who finally diagnosed her. in her fifties. When she came to live with me in Texas the doctors used the usual old story that it was no big deal, and prescribed the cheapest and least effective medication. Her health declined. My cousins also have this rare form of PA too. So, I am on a mission to find a doctor who can help me. I am hoping to find a portal where I can at least question doctors and not have to explore every rabbit hole in my search for a specialist. Thank you again for your kind reply.

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Replies to "Thank you for your reply. I know from my mother's long journey trying to find a..."

@ellasgirl13 I am so sorry that your Mom isn’t doing well and seem to be getting the run around. Have you been to a major medical center or university teaching hospital? You can also try the Mayo Clinic Care. Network: https://mayoclinic.org/about-mayo-clinic/care-network/members.
Rheumatologists specialize in autoimmune diseases so look for them at major clinics and teaching hospitals.
Let me know what happens!