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Pernicious anemia

Autoimmune Diseases | Last Active: Apr 29 9:19am | Replies (31)

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@becsbuddy

@ellasgirl13 I’m glad that you found Mayo Connect and members who can help you.. You might ask your doctor for a referral to a cardiologist who can evaluate your heart condition and prescribe blood thinners, if necessary. Are you currently seeing your PCP or a rheumatologist for the pernicious anemia? Rheumatologists specialize in autoimmune diseases. I’ve included a link for a National Institutes of Health website that has information on finding the right doctors.
https://rarediseases.info.nih.gov/contact
Will you stay in touch with me and let me know what you learn?

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Replies to "@ellasgirl13 I’m glad that you found Mayo Connect and members who can help you.. You might..."

Thank you for your reply. I know from my mother's long journey trying to find a specialist that not all doctors are created equal when it comes to Pernicious Anemia. She went to some of the finest hospitals in London and was prescribed iron pills or folic acid. That did no good and was absolutely the wrong diagnosis. As a child she had to consume raw liver several times a day, but it kept her alive, at least. It was a relatively recently graduated Doctor who finally diagnosed her. in her fifties. When she came to live with me in Texas the doctors used the usual old story that it was no big deal, and prescribed the cheapest and least effective medication. Her health declined. My cousins also have this rare form of PA too. So, I am on a mission to find a doctor who can help me. I am hoping to find a portal where I can at least question doctors and not have to explore every rabbit hole in my search for a specialist. Thank you again for your kind reply.