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Peripheral Neuropathy vs. Erythromelalgia

Autoimmune Diseases | Last Active: Jul 1 3:25pm | Replies (55)

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@johnbishop

Welcome back @lacy2, It has been awhile since you posted. I'm sorry to hear that you are having the burning pain. It's easy to find your last post if you get lost on Connect. Just go to the top and click on the profile icon, select Profile & Settings then click Comments at the left. Your most recent comment will be at the top of the list.

You mentioned seeing a nurse practioner and she didn't have any idea what was going on. Are you able to see a doctor for a followup appointment?

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Replies to "Welcome back @lacy2, It has been awhile since you posted. I'm sorry to hear that you..."

Hello John/all Yes missed being on here as so helpful but was going through an Application for MAiD in Canada and it was more paperwork/stress that I had anticipated, also a few more illnesses - all seem to be non life threatening but life altering. Also for 2 yrs my "doctor" was over phone, so I had to decide whether issues was enough to make the call etc. Also April last year had very bad attack (wont take time to explain but wierd) went by ambulance to emerge; dr on call said well, not a stroke, I said thats good news. But speaking to Neurologist about migrained a few months later he ordered MRI - our MRI machine being fixed so no one had one unless sent out of town for 11 weeks. Long story short, in Feb.2022 was told I had had a "small stroke". Anyway, such is life. I am printing your instructins for getting back on here, I am afraid my mind is not as sharp as it once was. After 2 yrs with no doctor Sept.1 got the nurse practitiner but went into the MAiD issue so it was a real mix up an I had a long list of health issues for her to deal with.... I feel I have aged 5 years in 2! But I still TRY and count my blessings. We dont have a neurologist here and one dermatologist works 2 days a week as wife ill but has hired a helper so Nurse said she would refer me to that office, but could be months wait for skin dr and going out of town, closest 1.5 hours away or Toronto, 4 hours - but with my ibs now fecal incontinence daily, multiple times a day surprise surprise I dare not embark on a long trip. Sorry for lengthy reply but I always did talk too much. It seems when I take a step forward I get another odd bodily problem and this burning face and other body parts no idea why... except already had peripheral neuropathy?? Things is I take as few meds as possible and drs. don't like that...... but have so many reactions and narrow angle glaucoma ....anyway will stop now and take a breath, so nice to be back here where there is help and guidance! 🌷 ps burning is not always red skin and not feet/hands which are always freezing, just other body parts in between! esp. face.