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Post pulmonary embolism problems

Lung Health | Last Active: Sep 4, 2022 | Replies (19)

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@mbalcala

I had a massive PE two years ago. Both my lungs were covered in clots, I ended up having a PTE to remove some of them from my lungs. My heart was able to store itself, and I was one blood thinners for almost a year.

My doc's think it was the hormones from being pregnant then having a c-section. I had my daughter on the 3 and by the 15, i was in the ICU.

Present day, I have to use an inhaler when needed, but almost to my normal self.

I have noticed that my memory is pretty bad. Could it be because my brain was not getting enough oxygen? My symptoms stated on a Thursday, was in the ICU by Sunday. My speech is bad too. It is hard to pronounce words that are a little tricky.

Can anyone relate? If so, what have you done to help with these side effects?

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Replies to "I had a massive PE two years ago. Both my lungs were covered in clots, I..."

Welcome, @mbalcala. I'm tagging fellow members @agbrogers @mark_fugate @calygirl84 @pattymac who have experiences with pulmonary embolisms (PE) and who may have similar experiences to relate.

I also wonder if part of your cognitive and brain issues may be related to post ICU syndrome. Have you heard of PICS before?

I encourage you to read some of the discussions in the Intensive Care (ICU) group here https://connect.mayoclinic.org/group/intensive-care-icu/

In particular, I suggest starting to read the messages posted in this discussion related to pregnancy, c-section and ICU experiences https://connect.mayoclinic.org/comment/690337/