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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@crsazbound

Hi I was just diagnosed I have so many ? My doctor order much more lab & X-ray so I guess I’ll know more after those results.

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Replies to "Hi I was just diagnosed I have so many ? My doctor order much more lab..."

@crazbound Welcome to Mayo Clinic Connect! So many of us can definitely relate to having a lot of questions when we first get a surprise diagnosis.

I'm glad to hear you are going to have more testing done to narrow down exactly what is going on. In the meantime, here is some information you can read up on:
From Mayo Clinic's website related to MGUS: https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
And from the Internaltional Myeloma foundation website: https://www.myeloma.org/what-are-mgus-smm-mm

And, as my oncologist always tells me, please don't spend a lot of time "Dr. Googling"! It is so easy to get wrapped up in many unrelated topics, scaring yourself, and thinking the worst. Be gentle on yourself. Wait to see what test results come back, and discuss them with your doctors. MGUS can stick around for a long time and never progress beyond that. It's important to remember that, okay?

Let me know if you have questions! We're here to help.
Ginger

I was diagnosed with MGUS over 14 years ago, DURING routine preop physical. Lab values are quite elevated but really do not have any bad symptoms. My Hemoglobin stays low at 7-8.2 range so take a nap most afternoons. My immunoglobulins are compromised but I am rarely sick. I will not take the CoVid vaccine because of more risk with MGUS but all in all I mostly forget I have it. Hope your course goes as smoothly.