← Return to Allodynia: Anyone else sensitive to touch?

Discussion

Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: Aug 30 5:28am | Replies (148)

Comment receiving replies
@rwinney

@mindfulness Hey there. I'm so sorry your husband continues to struggle. Has he spoke to his neurologist about what medication might give relief? I understand him being reluctant, but it might be time.

Chronic conditions can take over emotionally, physically and behaviorally, and before we know it, symptoms intensify. I hope he is speaking to a therapist to learn ways to manage his emotions. Meditation and diaphragmatic breathing is a good way to calm the system.

For Central Sensitization sensory issues of sound, taste, light, temperature, I have used graded exposure therapy to slowly desensitize my sensitized sensors, similar concept of retraining.

I found this informative blog on samatosensory rehabilitation:
https://rsds.org/somatosensory-rehabilitation-allodynia/
Please give your husband a pat on the back from me and tell him to hang in there. 🙏 There is hope, keep the faith and continue to advocate.

Jump to this post


Replies to "@mindfulness Hey there. I'm so sorry your husband continues to struggle. Has he spoke to his..."

Hi Rachel
I read your link and find it very interesting.
I have allodynia from small fiber peripheral neuropathy (SFPN). The posteding may contain helpful information for people who suffer from allodynia from some conditions, but I don't believe it would work for mine.
In the link's protocol, the initial goal is to isolate the nerve(s) causing the condition, which would not work in SFPN since, by definition, SFPN affects the very small nerves which are scattered diffusely in the feet, leg, and hands, involving many larger nerves.
This link provides potentially helpful information for people suffering from some causes of allodynia, but not all.