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Pituitary and pNET: Can't do the things I love anymore

Brain Tumor | Last Active: Oct 30, 2022 | Replies (17)
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@sturns

I mean I can no longer do the things I love anymore... and the pain is off the scale.

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Replies to "I mean I can no longer do the things I love anymore... and the pain is..."
Colleen Young, Connect Director | @colleenyoung | Jun 13, 2022

Hi @sturns, welcome to the NETs group. Is that a picture of you surfing?

The abbreviation PNET is sometimes used for primitive neuroectodermal tumor and others use it to refer to pancreatic neuroendocrine tumors (pNET). Can you confirm what type of tumor you have so I can connect with others? What treatment are you currently having for pNET and to manage pain?

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