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Allodynia: Anyone else sensitive to touch?

Neuropathy | Last Active: May 9 10:23am | Replies (138)
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@mindfulness

Thank you. The link you provided is very helpful.
We have been reading up on somatosensory rehabilitation to desensitize symptoms of allodynia. Have you tried some sort of desensitization therapy for allodynia?
We have been exploring the mind-body syndrome approach, but my husband has his doubts that this can work because he has not seen an improvement. He is getting demoralized and losing faith in the "process". He has been avoiding medication but, in the end, thinks he may end up starting a medication if this doesn't work in the near future. He is having a difficult time.

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Replies to "Thank you. The link you provided is very helpful. We have been reading up on somatosensory..."
Rachel, Volunteer Mentor | @rwinney | Jun 12, 2022

@mindfulness Hey there. I'm so sorry your husband continues to struggle. Has he spoke to his neurologist about what medication might give relief? I understand him being reluctant, but it might be time.

Chronic conditions can take over emotionally, physically and behaviorally, and before we know it, symptoms intensify. I hope he is speaking to a therapist to learn ways to manage his emotions. Meditation and diaphragmatic breathing is a good way to calm the system.

For Central Sensitization sensory issues of sound, taste, light, temperature, I have used graded exposure therapy to slowly desensitize my sensitized sensors, similar concept of retraining.

I found this informative blog on samatosensory rehabilitation:

https://rsds.org/somatosensory-rehabilitation-allodynia/

Please give your husband a pat on the back from me and tell him to hang in there. 🙏 There is hope, keep the faith and continue to advocate.

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