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@rittagal

Thank you so much for taking the time to respond. I never had issues until about a year after a wreck. I had been on a backpacking trip in Alaska a few months before, so guessing I was in good health. After my shortness of breath started I had heart and lung tests. Was not severe enough then to keep me from doing my job, which was very physical, but took the fun out of any activity. Had my first heart cath in ‘98 and a second in 2017. I never faint or lose consciousness; I just get do out of breath that my muscles just give in. No body will look for anything new. The doctors comments are, “your lungs are better than average. You have no cardiac issue. “. So, again I appreciate your response. I can’t even get an app with the only doctor here who deals with heart rhythm issues. He was the one who did the ablation for extreme, out of the blue, tachycardia which did not start until 2010 and it took care of that. I hope your doctors are going to help you. Thanks again.

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Replies to "Thank you so much for taking the time to respond. I never had issues until about..."

It is very hard to get an appointment with an Electrophysiologist Cardiologist here too. That’s why I asked my pcp to help me set up my presentation in order to convince the doctor to at least hear my information in person. We did such a good job, the doctor said he’d see me during his lunch break. This heart rhythm doctor is the top doctor of 35 other doctors, that’s how good he is. So the first thing my pcp and I did was order a Zio exterior heart monitor that was placed on my chest for two weeks. The results were interesting because it showed I was having issues with tachycardia while in my sleep. The highest rate was 164 but for only a short period of time. There were other episodes just like it but less than 164. Now here’s my point, if that doctor had only thought my regular pathway was messed up, he might have done an ablation to stop the tachycardia, and missed the actual cause, the loop of short circuit heart cells from my heart birth defect. So besides the Zio monitor, we set up my past history with passing out since I was 10yo. I did the research for WPW and found out I had all the symptoms. We included all that information and that did the trick, he saw me during his lunch break because he’s so in demand. Using the information I had presented, he asked me many questions and seemed interested in my case. Then I remembered something I had failed to include in the presentation, the spontaneous blackout episodes. That did the trick because I had had them since I was ten and many times since then. When I explained how quick they occurred, he reached in his pocket and showed me the loop heart recorder he wanted to implant in my chest just under my left breast. Its battery’s good for 5 years so I’m being monitored 24/7 by the company out in Oregon and I’m in Pennsylvania. What needs to be done, is to map out each rouge heart cell causing the short circuit to trigger my tachycardia and be destroyed one heart cell at a time. If it gets mapped out correctly, it could take up to 10 hours to do the procedure. I’ll be strapped to the table unconscious because you can’t move even a tiny bit or, well, you know. If they can’t map it out in time, I’ll go into tachycardia within one hour while I’m asleep and if I don’t wake up in time, I’ll go into A-fib and then have my fatal heart attack. I’ve had it happen twice since 2013 but lucky me, I woke up about 50 minutes after falling asleep and was able to get help, that first event was recorded at 197 bpm. So as you can see, those spontaneous blackouts proved the trick to finding my heart rhythm problem. Both events happen before I had the recorder implanted or saw my Specialist.