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Heart Rhythm Conditions – Welcome to the group

Heart Rhythm Conditions | Last Active: 43 seconds ago | Replies (931)

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@becky1024

I don’t know if my comment will help but because of your symptoms description, I may have a clue for you. I was born with a birth defect in my heart, a 1 in a million defect. After much research, it wasn’t until 2021 that I discovered I had WPW, Wolff, Parkinson, White Syndrome. I had lived 77 years with all the heart problems I have, not realizing it was WPW causing everything, including 3 heart attacks. Does this description sound familiar? I call them Spontaneous Blackouts! One second you’re standing, the next second you’re on the floor/ground wondering what you might have injured from the fall. There’s no warning at all with very little knowledge of what just happened. There’s no dizziness, lightheadedness, like fainting causes, just complete and instant unconsciousness. With that knowledge in hand and a pcp willing to help me prove my case of WPW, I realized I was seeing the wrong heart specialist. I needed to be seen by an Electrophysiologist Cardiologist, a specialist in Heart Rhythm issues. My heart is now being monitored 24/7 by an expensive loop heart recorder emplaned in my chest to track down the bad heart cells causing my problems, so they can be destroyed. You’ve had a ablation but that may not have solved your problem because my heart defect is actually a short circuit loop of cells between the SA Node and the AV Node which an Electo Cardiologist could find. Since you didn’t mention what type of doctor did it, I just wanted to tell you of my experience with Blackouts. Good luck.

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Replies to "I don’t know if my comment will help but because of your symptoms description, I may..."

Thank you so much for taking the time to respond. I never had issues until about a year after a wreck. I had been on a backpacking trip in Alaska a few months before, so guessing I was in good health. After my shortness of breath started I had heart and lung tests. Was not severe enough then to keep me from doing my job, which was very physical, but took the fun out of any activity. Had my first heart cath in ‘98 and a second in 2017. I never faint or lose consciousness; I just get do out of breath that my muscles just give in. No body will look for anything new. The doctors comments are, “your lungs are better than average. You have no cardiac issue. “. So, again I appreciate your response. I can’t even get an app with the only doctor here who deals with heart rhythm issues. He was the one who did the ablation for extreme, out of the blue, tachycardia which did not start until 2010 and it took care of that. I hope your doctors are going to help you. Thanks again.