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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: 6 days ago | Replies (329)Comment receiving replies
Hello Sally! It’s so important to be able to talk with others about SMZL especially since it’s fairly rare.
My spleen is holding to its size at diagnosis and I cannot help much with drug regimens or surgical questions, but I think it’s important for our community to stick together!
I can hear the concern in your message. It took me some time to come to grips with the fact that I have a cancer - often referring to my doctor as my hematologist, not oncologist. Eventually I got over that 😉
My newest issue is watching my IGG proteins and after bloodwork in July may get an infusion to boost those #s to better support my immune system.
Write any time you want to chat. Wishing you well and hoping for encouraging news for you!!
Laurie
Replies to "Hello Sally! It’s so important to be able to talk with others about SMZL especially since..."
I confess I don't know what "IGG" proteins are? And why they are a concern for you? I did get two rounds of an injection from my cancer doc, it is a new drug approved by FDA to help boost immunity in cancer patients like us - it is called "Evushield". You might check into that? Thanks for reaching out.
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Hi Laurie, thanks for your concern & I too was in shock for some time about being diagnosed with SMZL. I joke with friends that all the years of clean living has caught up with me and I should have been drinking a lot and smoking and eating lots of fried food and not exercising! When you say your spleen is holding to its size what do you mean? Mine grew to twice its normal size before my 4 rounds of Rituxan started. Thanks Sally