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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1606)

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@rosemarya

Hi, @gammie8, and Welcome to Connect.
I am a transplant recipient and I can assure you that your husband is not alone with his fluid build-up. It is one of those bothersome symptoms that comes with advancing liver disease and cirrhosis. I had fluids (ascites) accumulation before transplant and it increased over time, and made walking and movement difficult for me. I also needed paracenteses procedures to drain the excess fluid. My transplant was 13 years ago, and i can still remember the relief after having a paracentesis procedure. I had to wear x-large sweat pants when I entered the procedure, and had to cinch the waist when the paracenteses was finished!
After a while, I was not able to sleep on my back. but always needed to be propped up in a semi-seated position with pillows. (It would be unfair if I didn't add that I also had kidney failure and needed dialysis which might have made my fluid retention worse)
My paracentesis procedures averaged 6 to 8 liters of fluid every 10 days before transplant. I did not need any after the transplant surgery.

Is your husband having the pre-transplant evaluation as an outpatient or is he an inpatient? It is a strenuous schedule, isn't it?

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Replies to "Hi, @gammie8, and Welcome to Connect. I am a transplant recipient and I can assure you..."

Hi Rosemary, my husband is seeing the transplant team as an outpatient at this time. He does all his bloodwork locally but we travel to Houston Medical Center every 2 to 3 weeks. Yes the process is very grueling! At times we don't know if we are coming or going. Ha! But with all that we have been through from what I have read and heard if he can get relief with a new liver, it will be so worth it. My husband is 74 years old and most people are younger that have transplants. His health is getting worse because of the swelling and all the doctors tell us is that he will be better after transplant. I am so hoping so!!