@gammie8 I had a lot of swelling and fluid build up pre-transplant. It was very uncomfortable. One two occasions it was "weeping." I never had fluid in my belly but mostly in my legs, ankles and feet. I could only fit into one pair of my sandals, and wore pants with elastic waists and dresses that were flowy. It was hard to move, though moving was one way to get rid of fluid. I took different diuretics at high doses but they had to be cautious to not disrupt electrolytes. It helped when I elevated my feet and legs while lying flat on my bed with a bunch of pillows so legs/feet were higher than my heart -- 30 minutes twice each day. I ate VERY little salt. But I was frustrated. After my transplant surgery, I lost all of the water within about 2 months - over 60 pounds. That is a lot for my small frame. I know how hard it is to manage all of that retained fluid. It will eventually come off. Though when I was pre-transplant people told me that and I didn't believe them! Best of care to you and your husband.

Thank you so much for replying. I read it to my husband because he needed to know from someone who has been through it and it gave him more hope for the outcome. Thanks again!