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Longtime caregiver looking for support and coping tips
Caregivers | Last Active: Oct 1 7:57pm | Replies (113)Comment receiving replies
You are in the most difficult situation I can imagine. It is excruciating accompanying a loved one on this journey, knowing there is little you can do to change the course of her disease.
Please continue to find joy in the little moments. And remember that if it all becomes too much to handle in your home, there are options. My sister and her family just moved her mother-in-law to residential hospice this week because her cares became too much for 2 people at a time to manage. They are sad that they could not honor her wish to be at home, but we know from prior experience that she and the family will receive loving care there.
Sue
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Sue, Thank you for your note. I found joy todya in getting a haircut and shopping at WalMart!!
Our hospice doesn't have a residence facility, only for respite care. She would have to be in a group home of some sort, with hospice still managing her care. The other option would be somehow getting her back to Minnesota to the residence hospice there. In the meantime, we're hanging in there. She told me once if I put her in a care center that would be the last time I saw her. That really hurt, but I think when it came down to it, she would change her mind.... She doesn't remember a lot of things she has said! Sometimes that's good and sometimes not!