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Liver transplant - Let's support each other
Transplants | Last Active: Nov 13 8:00pm | Replies (1617)Comment receiving replies
I am a post liver transplant 1.5 years , it’s been difficult my liver is doing great most of my problems are caused by the medications . I have chronic kidney disease from my elevated blood pressure and my prograf. And osteopenia from prograf and stage 1 blood pressure from prograf I am on 3 mg in the am and 3 mg in the pm I have developed a bulge above my liver which is tender and I swell up in the evening in that area with fluid. When I wake up in the morning I am fine except I have to make at least 4 trips a night to eliminate fluid. Is anyone else having this issue .? I went to my new doctor he has recommended an mri . We will see .
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@mggggrossman, Welcome to Connect and congratulations on your almost recent transplant. I also have a liver (and a kidney) I am 13 years post transplant.
You mentioned that your liver is doing well and that is so very good to hear! In spite of the difficulties that you are experiencing, you must be taking good care of your new liver. 🤍
It is true that our medications do come with a lengthy list of side effects, and each of us will likely have a different experience based on our own body's response (along with all of those medical things that I entrust to my doctors). To counteract my blood pressure, I take blood pressure meds that are monitored by my local Primary Care Doctor with the approval of my transplant team. My osteopoenia is checked every 2 years as part of my annual evaluation, and I have been directed to take calcium and to get exercise. Are your doctors monitoring your bone density, blood pressure and your kidney disease?
What do they say about the cause of the abdominal swelling? When will you have the MRI?